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Lewy Body Journal: Our Family's Experience with Lewy Body Disease
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Links

On this page:

General Information and Support

Lewy Body Dementia Association
The Lewy Body Dementia Association provides general information about the disease, support information for caregivers, a newsletter, and lots of links.
Lewy Body Society
The Lewy Body Dementia Society is a charitable organization in the United Kingdom with the mission of raising awareness of LBD throughout Europe.
Lewy Body Foundation
The Lewy Body Dementia Foundation is an Australian group that proposes to fund research on LBD and Parkinson's disease.

Articles About Lewy Body Disease

Fact Sheet: Dementia with Lewy Bodies
This fact sheet from the Family Caregiver Alliance describes Lewy body disease and its symptoms.
Dementia with Lewy Bodies
Written by Howard A. Crystal, M.D., in 2001 (but updated more recently), this in-depth article describes Lewy body disease and the kinds of medication used to treat it.
LewyNet: Dementia with Lewy Bodies
Hosted by the University of Nottingham (UK), LewyNet provides a lot of information without too much obtuse medical jargon.
Technical Articles/Current Research
A great source of information is the National Library of Medicine. Enter "Lewy body disease" into the search field to find abstracts of published research articles.

E-Mail Message Groups

LBD Caregivers and LBD Caring Spouses
These are two active Yahoo message groups for caregivers and spouses.

Message Boards

Lewy Body Dementia Association Forum
The forum of the Lewy Body Dementia Association.
Alzheimer's Association's Online Community
The Alzheimer's Association has several message boards, including one for caregivers and another for getting advice from care consultants (not specific to Lewy body disease).
Alzheimer's Disease and Dementia Forum
This NeuroTalk Communities message board about Alzheimer's disease and other dementias is hosted by Psych Central, a mental health network.

Coping

Find Your Chapter
Through the Alzheimer's Association, you can locate a local chapter and find out about support groups in your area.
Family Caregivers: Coping
The Alzheimer's Association has information about coping.
Caregivers Services
The Lewy Body Dementia Association has information for caregivers, along with information about support groups for LBD.

Feeding Tubes

Alzheimer's Association End-of-Life Decisions Brochure
This 694K PDF document includes information about feeding tubes and the position of the Alzheimer's Association.
The Cost of Dying: Simple act of feeding poses painful choices
Informative article published by MercuryNews.com.
 
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